Woo Hoo for once! Nathan was discharged from the hospital this afternoon. As though a miracle had set in, his strength and grip had regained (despite muscle enzyme changes shown on labs). Feeling pretty good, they let him leave to be with us in the NICU with Fin and so far has been doing pretty well. It’s so nice to have him back.
Griffin s doing pretty good, too. I went to my doctor appt today, and everything is moving slowly (healing-wise). Then I went to see Griffin. My morning with him started out frustrated because they had oxygen on him – stating that his oxygen desaturated to the 70s. When I looked at what was going on when his oxygen level fell, I found they were feeding him on his back. Apparently side-lying position feeding didn’t get passed along to the new nurses. Once they fed him the other way, he did fine. Dr Pelinka called and I asked her to write an official order that they have to feed him side-lying, and they did. The nurse had also said he was very lethargic and not waking up for her. But, once I started talking to him, he woke right up.
Later that afternoon, the lady came to hook him up to an EEG machine, the machine that catches seizure activity. Dr Pelinka had talked to the pediatric neurologist in Porltand who suggested doing a repeat one to compare activity. He also said that if Fin was his patient, he might just trying him off of Phenobarbital (seizure med) to see how he does – as the seizures are more than likely related to the illness rather than a chronic seizure disorder. I am hoping that they at least taper him off of it – as this afternoon he seemed very lethargic. We bathed him and he was very upset, but once we get his clothes back on we could barely wake him up to eat. I sure like to see his eyes, but this afternoon was fruitless on that front. Tomorrow Dr Goins, the pediatric neurologist here in town will be in for a consult. Dr Pelinka told me that Fin’s looking so good that depending on what Dr Goins says – he might get to go home tomorrow! If not tomorrow, probably Thursday. Let’s pray Dr Goins has good news … oh! And the pediatric neurologist said he hadn’t seen the MRI that was read with an abnormality – but said that what it was suggesting as an abnormality seemed to be something normal in premies. That was good news – but we’ll wait for the official report.
Until tomorrow …
1 comment:
So glad that things are looking up - still praying for you. I hope Fin is home with you soon!
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